Thanks to our fabulous Register4 members we have been able to save years off the recruitment time for several research projects, and have made a huge impact on recruitment for the other projects. As the research progresses, we will add updates to this page so you can see the impact your participation is making.
Cancer & Sexuality Study
Of the 425 people who signed up for this project, Register4 was able to provide over 390 participants – making a huge impact to the results of this research. The majority of participants reported sexual changes resulting from cancer or cancer treatment and these changes were associated with depression and anxiety, and with disruptions to relationships, for many women.
Physical well-being for women with metastatic breast cancer
Our findings show that although women with metastatic breast cancer may be weaker, less fit and relatively inactive compared to their healthy counterparts, they are still functionally capable of being physically active, and in the exit interview, clearly indicated a desire to be physically active.
Currently the researcher's results are being reviewed in peer reviewed journals, and they will be able to announce their findings when the reviews are complete.
Investigating Patient Preferences
The number of Register4 members who joined this project in 3 days would have taken the researcher more than 3 months to recruit using traditional recruitment methods. In addition to the swift recruitment, Dr Bessen was able to recruit a larger number of women from across Australia.
The number of Register4 members who joined this project to date would have taken the researcher up to 3 months to recruit using traditional recruitment methods. In addition Register4 members have helped the Lifepool team ensure their resource represents all Australian women.
Lifepool is continuing to recruit Victorian women - if you would like to join the Lifepool project you can click here to find out more.
Sexuality After Breast Cancer
Preliminary findings have been presented at national and international menopause conferences. At this stage, data reveals that yes, women are very distressed by vaginal dryness following breast cancer treatment - more so than other quality of life and menopause symptoms - and that using a vaginal lubricant is beneficial. Most of the participants so far have anecdotally described taking part in the study as a positive experience.
Information and Support Needs
The orgininal study took place in 2002 and found that the top for information issues important to women were the same in 2002 and 2013.
Another study is being followed on from this and will look at the support needs and perceived self-efficacy of woman who have access to a Breast Screen Nurse (BCN) to women who do not. Comparisons will also be undertaken to examine differences based on geographical location.